Melatonin

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Hopeful
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Joined: 02/12/2009 - 19:00
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Melatonin

A few months back when we first started on the long process, the doctor talked about starting ys on melatonin because he doesnt sleep for more than an hour or so at night and its very broken sleep.  He just cant wind down, if he does nap (not normally but even for 5 minutes in the car), thats him up all night, he doesnt need sleep, well he does because he crys and is moody and has melt downs but just cant sleep.
At the time I didnt want to try him on it because I wasnt sure about side effects (although the doctor said there wasnt any?).  The thing is Im wondering if he slept better would it help with the melt downs, especially as he's due to start nursery in september.

Any views? Anyone use it or think its worth trying? I know it wont make him sleep but if he's at least more restful it may help him and tbh us.

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xxJaneyxx
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Joined: 25/07/2011 - 14:19
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I think it would be worth a try.  I have a couple of friends whose children take it and they say it has made a big difference to the lives of the children and family as a whole.

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JacquiL
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Joined: 26/11/2009 - 11:56
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The only side effect is sleep, it's produced naturally by the body, but some SEN children's brain seems to switch off the process of making it. It does make the child sleep, it may not keep them asleep, but for children like that you can give a second dose at about 2 in the morning.
Believe me it's a godsend, without it I'd probably have killed someone by now, most probably C and hubby

Hopeful
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Joined: 02/12/2009 - 19:00
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I was really worried with him being so young that it would have a bad effect on him but it's now at the stage that everyone is miserable including him and I know it's not his fault but I'm ready to throttle him.  This weekend has brought a lot to a head it was just a total melt down on his part and I think the lack of sleep just made everyone snap.

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Brandie
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Joined: 26/11/2009 - 14:34
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It doesn't make you sleep any longer but it gives you time ro settle down to sleep. When Ys was on it we gave it ro him at about 9pm and he was ready to sleep about 9.30-10pm and he slept thrpough until about 6.30-7am.
Es has got use to the fact that his younger brother may go to bed after him so they is no problems there either.

Hopeful
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Joined: 02/12/2009 - 19:00
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See atm it doesn't matter how late I'd let us stay up he wouldn't sleep, nor would he sleep any later.
He'd break supernanny and her bedroom routine. I've stuck to the same routine, bed at 6.30, returning him numerous times he just doesn't wind down. It was after 11 when he slept last night. He woke at 12.30 and that was him, full of beans.
Hes always out running about nothing makes him tired! I'm at my wits end. The weekend was awful, I was in constant tears, I just felt everyone was staring at me wondering why I couldn't control him, pr what I'd done on him to make him so upset.  Ive asked for help for him/us to understand what we need to do to help him/us cope to make things easier for him but as you know it's like banging your head against a brick wall. The doors are so tightly shut its hard to see even a crack of hope.

vicarinatutu

melattonin saved our lives .....ds was 15 when prescribed it.....it was much needed.  he is almost 21 now...... he used fo fall asleep at school.

vicarinatutu

melattonin saved our lives .....ds was 15 when prescribed it.....it was much needed.  he is almost 21 now...... he used fo fall asleep at school.

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Brandie
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Joined: 26/11/2009 - 14:34
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They don't know why some kids don't need as much sleep as others. Ys seems to store up sleep. If he's ill and sleeps more then we have a day once he's better where he will only sleep for a few hours.

If it was me and he was messing around that much and not winding down then I wouldn't be trying to put him to bed. We don't put Ys to bed until he is ready to go. We make sure the dvd player and consoles and PC are off at 9pm. Then we try and have some calm time. Last night for instance we all went and watched some tv and YS cuddled up with DH. he was ready at 10pm for his bed and was asleep by 10.15pm. Sometimes we read to him before bed etc. You have to find what works for you.
We also found the introduction of  a second bed so he could choose where he slept helped. ( we just have a matress on the floor).

Hopeful
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Joined: 02/12/2009 - 19:00
Posts: 6370

Earliest appointment we can get is the 16th so I think we'll give it a try, atm anything is worth trying we'd half an hour sleep and if it wasnt for coffee Id be asleep on my feet unlike ys thats buzzing now.

Hopeful
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Joined: 02/12/2009 - 19:00
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Well our own doctor is off on holiday for the whole summer. The stan in doctor said he doesn't know anything about melatonin or aspergers so wouldnt prescribe it and to wait until our doctor came back. I showed him the doctors notes for ys recommending melatonin, he saw ys in meltdown mode but still said we'd to wait and see what happens with our own doctor in September.

After the weekend I've just had with ys and es playing up I just broke down.  OH just hasn't a clue but he's trying to be better with ys but because I'm with him 24/7 the lack of sleep just makes things harder to cope.

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